Effective Date: January 1, 2026
 

1. Introduction

This Cookie & Tracking Notice explains how Rare360 ("Rare360," "we," "our," or "us") uses cookies and similar technologies on our website, www.rare360.life (the "Website").
 

We believe transparency is fundamental to building trust with the rare disease community. This notice describes the technologies we use, why we use them, and the choices available to visitors.
 

This Cookie Notice should be read together with the Rare360 Privacy Policy.
 

2. What Are Cookies?

Cookies are small text files placed on your computer, smartphone, tablet, or other device when you visit a website.

​

Cookies help websites function properly, remember user preferences, improve security, and provide information about how visitors use a website.

 

Similar technologies may include:

• Web beacons

• Pixels

• Local storage

• Session storage

• Device identifiers

• Other tracking technologies
   

Throughout this Notice, these technologies are collectively referred to as "cookies."
 

3. Types of Cookies We Use

A. Strictly Necessary Cookies

These cookies are essential for the operation and security of the Website.

Examples include:

• Session management

• Authentication

• Security protections

• Load balancing

• Fraud prevention

• Website functionality

These cookies cannot generally be disabled because the Website may not function properly without them.
 

B. Functional Cookies

Functional cookies allow the Website to remember your preferences.

Examples include:

• Language preferences

• Accessibility settings

• Form preferences

• User interface preferences

These cookies improve your experience but are not required for the Website to operate.
 

C. Analytics Cookies

Rare360 may use analytics technologies to better understand how visitors interact with the Website.

Analytics information may include:

• Pages visited

• Time spent on pages

• Browser type

• Device type

• General geographic region

• Website performance information

• Referral sources

Analytics data helps us improve the Website and user experience.

Whenever practicable, analytics information is aggregated or de-identified.
 

D. Performance Cookies

Performance cookies help us understand:

• Website loading times

• Technical issues

• Broken pages

• User navigation

• Overall Website performance

This information helps improve reliability and accessibility.
 

E. Marketing Cookies

Rare360's primary mission is patient engagement—not advertising.

Accordingly:

• Rare360 does not sell personal information.

• Rare360 does not use cookies to sell participant data.

• Rare360 does not permit third parties to use participant information for unrelated advertising purposes.

If marketing or advertising cookies are introduced in the future, this Notice will be updated and visitors will be provided with any required choices under applicable law.
 

4. Information Collected Through Cookies

Depending upon the technologies used, cookies may collect information such as:

• IP address

• Browser type

• Operating system

• Device information

• Date and time of access

• Referring website

• Pages viewed

• Time spent on pages

• Clickstream information

• Website performance metrics
   

Cookies generally do not collect medical information or research responses unless you voluntarily provide such information through a secure form or research participation process.
 

5. How We Use Cookie Information

Rare360 uses cookie information to:

• Operate the Website

• Improve Website performance

• Maintain Website security

• Prevent fraud and abuse

• Understand Website usage

• Improve accessibility

• Enhance user experience

• Diagnose technical problems

• Measure Website effectiveness
   

6. Third-Party Services

Rare360 may use trusted third-party providers to support Website functionality.
 

Examples may include providers offering:

• Website hosting

• Analytics

• Content delivery

• Security monitoring

• Spam prevention
   

These providers may place cookies on our behalf solely to perform services for Rare360.
 

They are not authorized to use cookie information for their own unrelated purposes.
 

7. Managing Cookie Preferences

Most web browsers allow users to:

• View cookies

• Delete cookies

• Block cookies

• Limit third-party cookies

• Receive notifications before cookies are stored
   

Browser settings differ by browser.
 

Disabling certain cookies may affect Website functionality.
 

8. Do Not Track Signals

Some browsers support "Do Not Track" (DNT) settings.
 

Because there is no universally accepted standard governing DNT signals, Rare360 currently does not respond differently to DNT requests.
 

Visitors may manage cookies through their browser settings or, where available, through our cookie preference tools.
 

9. California Privacy Rights

Rare360 does not sell personal information.
 

Rare360 does not share personal information for cross-context behavioral advertising as those terms are defined under applicable California privacy laws.

California residents may exercise applicable privacy rights described in our Privacy Policy.
 

10. International Visitors

Where required by applicable law, Rare360 will obtain consent before placing non-essential cookies on your device.
 

Visitors may withdraw previously granted consent at any time through available cookie preference tools or browser settings.
 

11. Security

Cookies are used in conjunction with Rare360's administrative, technical, and organizational safeguards designed to protect personal information.

However, no electronic transmission or storage method is completely secure.
 

12. Changes to This Notice

Rare360 may update this Cookie & Tracking Notice periodically to reflect:

• changes in technology;

• legal or regulatory requirements;

• Website functionality; or

• business practices.
   

The revised version will be posted on this page with an updated Effective Date.
 

13. Contact Us

If you have questions regarding this Cookie & Tracking Notice, please contact:

Rare360

Website: https://www.rare360.life

Email: admin@rare360.life
 

Appendix A – Cookie Categories Summary

Cookie Category                          Purpose                                                                                         Required?

Strictly Necessary                          Website operation, security, authentication                                           Yes

Functional                                     Save user preferences and settings                                                     No

Analytics                                      Measure Website usage and improve performance                               No

Performance                                 Monitor technical performance and reliability                                        No

Marketing                                    Advertising and campaign measurement (if used in the future)                   No
 

Rare360's Commitment

Rare360 was founded on the belief that patients and caregivers should never have to choose between participating in research and protecting their privacy.

Our approach to cookies and tracking reflects that commitment. We strive to collect only the information necessary to operate and improve our Website, maintain strong security practices, and support meaningful engagement with the rare disease community while respecting your privacy and maintaining transparency about our data practices.