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Rare Families Financial Assistance Fund

In Partnership with

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A fund dedicated to supporting 
Rare Disease Families

addressing the financial needs of disenfranchised rare disease communities

The Rare Families Financial Assistance Fund (Rare Families FAF) is a financial assistance program designed in collaboration with the Rare Advocacy Movement (RAM)'s "Our Lives Matter" Diversity, Equity, Inclusion (OLM DEI) Initiative.

Purpose: to help alleviate some of the financial burdens that disenfranchised rare disease families face on a regular basis. 


Options: You have the choice of supporting Duchenne Muscular Dystrophy (DMD) Families (in honor of Tim Gillen), single parent rare disease families, or any disenfranchised rare disease family.

Your support contributes to a financial life-line for rare disease families facing eviction, hunger, and other life threatening situations because of financial stress exacerbated by issues like the pandemic, institutional oppression, the evolving needs of their children diagnosed with a rare condition, etc.

We Are Rare
our Lived Experiences, as people living with rare conditions, motivate us to develop programs with a real world impact.

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