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Rare Love Ventures.
We are rare.
Protecting the interests of the people of the rare disease community.
Connecting trustworthy biopharmaceutical stakeholders to community-based services, insights and trust.
In partnership with the Rare Advocacy Movement, Rare Love Ventures is dedicated to maintaining the infrastructure required to build trusted bridges of communication between biopharmaceutical service providers and professional activists, advocates and experts with lived rare disease, chronic illness, disability and neurodiverse experiences.
"Our Lives Matter" Diversity, Equity, Inclusion Initiative
ADULTS LIVING RARE Initiative
Support, Value, Respect the Living Rare Community
@RareAdvocacy
Community-based opportunities
The Lived-Experiences, Insights & Perspectives of people impacted by Rare Diseases have value.
Collaborations & Partners
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