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Discussioni comunitarie tra i caregiver DMD
Your lived-experience as a person diagnosed with Paroxysmal Nocturnal Hemoglobinuria (PNH) has matters, has value and provides you with the opportunity to contribute to market research. In partnership with the Rare Advocacy Movement (RAM), we work to ensure that all market research practices and community engagement activities through rare360 are executed in a conscious and respectful manner.
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