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Community Discussions amongst DMD Caregivers
In partnership with the Rare Advocacy Movement through a program called Rare360, Rare Love is working to establish the fair market value for rare disease community-based and advocacy-based engagements.
Interested in subscribing to the Duchenne Muscular Dystrophy rare360 Perspectives, Insights & Experiences (P.I.E) program? Subscribe by clicking on the button below.
This link will take you to a secure form that is designed to protect your information from unauthorized accessed.
You have the power to report your experiences (whether positive, negative or a combination of both) with any company or agency conducting market research on Duchenne Muscular Dystrophy to the Rare Advocacy Movement's Rare360 Market Research Ethics Review Board. By sharing your experiences, you help to make market research conducted on behalf of the pharmaceutical industry a better experience for the people of the rare disease community.
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