Join the forum and find the answers you have been searching for.
The Rare Disease Ecosystem
Navigating the Rare Disease Ecosystem is complex and can be overwhelming. We are RARE. We get it. Ask us your questions.0
Adults Living Rare
71% of people living with a rare condition are 18 years of age or older.0
OLM DEI Initiative
The rare disease community's naturally diversity is not being represented, nor heard, in the patient advocacy landscape.0